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Help Daisy and her family fight brain cancer
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-19868 Days Left

Help Daisy and her family fight brain cancer

Raised: $5,940.00 / Goal: $11,000.00

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This fundraiser is for a sweet four-year-old girl named Daisy who was diagnosed with an aggressive form of brain cancer just a few weeks ago.
Asking for help is incredibly hard when the reason seems unfathomable and there is no end in sight to solutions or a straight path to recovery. We know this is just the beginning of a very long and arduous journey for a little girl and her family. We hope you can hear her story and act by contributing or sharing this fundraiser.
One morning little Daisy woke up not feeling very well. She had a headache, was sore on her elbows and knees, and vomited her breakfast. This sounds like a typical day one might wake up to with a four-year-old, and her parents Paul and Bex brought her to the pediatrician and eventually to the ER when the symptoms continued. Within a few days of unanswered questions, continuing symptoms, and worry, Daisy was given a CT scan where they found fluid and a large tumor in her brain. At that moment everything changed for Daisy, Paul, Bex, and baby James, and every second counted.
Daisy was scheduled for immediate emergency surgery to drain and relieve the pressure of fluids on her brain which was causing the symptoms and surgery to remove the tumor was scheduled for within 48 hours of finding out the diagnosis. What followed has been a harrowing series of MRI test biopsies and surgeries to remove the tumor and save Daisy’s life.
Finding out that their baby girl had a brain tumor was just the first realization in a roller coaster of operations, biopsies and tests. After the initial surgeries, the 10-day wait for biopsy results was unbearable, but finding out that Daisy’s tumor was not only malignant but a rare and very aggressive form of brain cancer called an Atypical Teratoid Rhabdoid Tumor has rocked this family’s foundation.
With the devastating news that the tumor was malignant, Daisy and her family now face her treatment and all of the steps it takes to get her body ready for the challenges she will face and how to get through it. Daisy has to be in a stable condition to start chemotherapy which means that the fluids have to be draining properly from her brain cavity, she has two spinal taps, and more MRIs to make sure all of the tumor has been removed. And even more, waiting to get confirmation from multiple cancer research organizations that her biopsy result of Atypical Teratoid Rhabdoid Tumor is correct and what the treatment steps will be.
Daisy started her first cycle of chemotherapy on Thursday 10/5. As we all headed into a long weekend Daisy and her family started the next step in trying to beat this cancer!
In just a few short day Daisy went from smiling and playing to having to face unfathomably difficult physical challenges. Daisy’s surgery to remove the tumor went as well as it could have, as the mass was aligned between the two primary left and right brain lobes where the tumor was mostly in fluid and from the CT scan thought to be not attached to her brain. She underwent two surgeries to remove the mass with a necessary intermission while she recovered enough from hemorrhaging to continue the surgery.
Unfortunately, the mass was attached to an area of her left lobe that controls her motor skills and Daisy has lost control of movement of the right side of her body. Daisy can squeeze her fingers tight on her left hand when prompted, but she is still nonverbal. There is hope that with the right treatment and physical therapy Daisy will regain full use of her right side, but the priority is keeping Daisy alive and fighting this cancer. Daisy’s parents Paul and Bex have not left her side for weeks to make sure that every time Daisy opens her eyes one of them is there.
There are so many unknowns for Daisy as her biopsies are analyzed and her chemotherapy and radiation treatment started. Every day there are little glimmers of hope for recovery and also unfortunately medical setbacks that are daunting and exhausting for Daisy and her family.
Daisy has physical, occupational, and speech therapy every day as she continues through chemotherapy. Since her surgery, Daisy has been not only extremely weak, but she has lost the use of the right side of her body. There are little glimmers of hope and Daisy smiles and even laughs! she is regaining some head and next control and her right side which has been immobile since her surgery is slowly opening to becoming more receptive to the physical therapy. Daisy will have to go to an additional rehabilitation facility between chemotherapy treatments to have a more regimented and intensive therapy.
There are no explanations, guidelines, or textbooks to tell a family what to do when something like this happens to their child. The speed to react and save their baby girl has put an intense emotional, physical, and financial strain on this family. Every minute feels like it counts and yet the time between every appointment, scan, bloodwork, biopsy and every minute feels like a week and every day like a month. Waiting and not knowing what will happen next can be paralyzing for a family and this is why it is so important for friends, family, and community to take action and make a difference. Bex and Paul may not have the energy and space to plan the next step when every step is uncertain, but we can!
There is no way to quantify a specific financial amount or need since there are so many continuing unknowns. But what we do know is that every little bit of funds raised will make a difference and go towards the health safety and betterment of little Daisy as she fights for her life.
There are so many unknowns in this process:
Were they able to remove all of the aggressive tumors?
What treatment will be decided for Daisy?
Will Daisy recover mentally and physically from her surgeries?
How long will she have to be in the hospital?
Will they stay or be transferred to a different location with alternate medical care?
How will they cover additional travel expenses?
How will they cover bills?
What kind of physical, occupational, and speech therapies will she need?
Will they need childcare for baby James to be available for Daisy?
Will she need at home medical support?
How much of this does insurance cover?
When can her family go back to work to have a means of supporting themselves?
AUGUST 20: Daisy doesn't feel well. Sore elbows and knees and vomiting.
AUGUST 23: Pediatrician visit looking for Lyme
AUGUST 24: First ER visit and given IV fluids due to dehydration
SEPTEMBER 1: Pediatric Gastroenterologist specialist appointment
SEPTEMBER 1 ( Labor Day weekend ): Daisy was admitted an immediate CT scan
September 2 ( Saturday ): SURGERY 1: Daisy is sedated and intubated to relieve the pressure of fluids on her brain to stabilize her condition. First MRI: Was this tumor operable? ( Almost 6 hours of waiting and Daisy is in and out of consciousness ). Decision made to operate immediately the next day.
September 3 ( Sunday ): SURGERY 2: When they reached the tumor they found that it was more extensive than originally thought from the MRI’s. Daisy starts to hemorrhage during the first operation and the procedure is stalled while she gets a necessary blood transfusion and rest.
September 4: (Labor Day ): Daisy goes in for her second surgery to remove the rest of the tumor. Samples of brain tissue were sent out immediately for biopsy.
September 5: Continuous support in PICU ( Pediatric Intensive Care Unit).
October 5: Daisy begins Chemotherapy
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